Tech PR expert David Joseph is to leave his role as MD of Citigate Technology next month to join the charity in the role, created as part of a restructure of fundraising and communications.
Joseph, whose three-year-old son has epilepsy, said he plans a significant stepping up of lobbying and media work.
'In terms of the public's consciousness it's a misunderstood area and in Government more needs to be done. It needs to be higher up the agenda,' he said.
Joseph pointed to a Government report released in May on sudden deaths in epilepsy as a step in the right direction. 'But our aim is to make sure that further research, and commitment from the government on raising awareness is carried out,' he added.
The restructuring at the charity has led to the merging of the comms, information and education and fundraising teams into one 30-strong directorate.
Reporting to Joseph will be head of comms Margaret Thomas, director of fundraising Laura Knapp and a yet to be appointed head of information and education.
Joseph, who reports to charity CEO Graham Faulkner, has been with Citigate since 1991 and was made MD of the tech practice four years ago. Before working at the agency he was in the fundraising department of the NSPCC. The agency has no plans to replace Joseph.