WASHINGTON: Psoriasis Cure Now (PCN), a nonprofit patient advocacy group, has launched an education effort aimed at greater public understanding of a disease that is not always taken seriously by the general public.
The effort launched with “Short Sleeve Day” on Sept. 15, when musicians with psoriasis headlined a combination of awareness events, fundraisers and parties in four US cities.
Michael Paranzino, president of PCN, said that while he’d always like to see greater participation, he felt the launch was successful. After testing the waters with San Francisco, Chicago, Salt Lake City, and Washington, the group is shooting to take the event to 20 cities next year.
“Whatever has been happening in previous years hasn’t worked in the sense that psoriasis still tends to be a punch line relative to other diseases that are taken more seriously,” says Michael Paranzino, president of PCN.
The organization has also launched a video contest, hoping to attract films the group can use as part of its education outreach. More than 30 videos have already been entered through its Web site, www.psoriasis-cure-now.org.
All communications outreach is handled in-house, though Paranzino said they were hoping to grow to a size that would necessitate agency help.